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The Motor Mind project is a youth-led initiative born from a family affected by neurological disorders and a need to help others going through similar situations. As a varsity athlete, I have always looked at the brain through the lens of performance; however, when my mother was diagnosed with a degenerative motor-system disorder, that understanding became a mission. We bridge the gap between complex neuroimaging data and real-world caregiver support, investigating how high-intensity movement can preserve the 'motor mind. We believe that while a diagnosis may affect movement it should never paralyze a family's hope. The Motor Mind Initiative focused on raising awareness about neurological disorders while also raising money to provide small-respite grants to those in need of funding to pay for their neurological rehabilitation. Through research, micro-grants for respite care, and community education, we are working to ensure that the upcoming generation of neuroscientists and caregivers are equipped to succeed.
THE SCIENCE OF RESILIENCE: OUR STORY
Most 15 year-olds measure their lives in school semesters and sports seasons. My life changed when I started to measure my life in motor function. Watching my mother navigate a degenerative motor-system disorder was like watching a real life movie of what happens in the nervous system of a person with a neurological disorder. As a competitive rower, I was used to pushing my body to its absolute limit-relying on the seamless connection between my brain's intent and my muscle's response. But at home, I witnessed the "disconnect." I saw how Parkinson's and MS don't just attack the body; they attack the rhythm of a family. This disconnect wasn't only prevalent in my mother but also my Uncle who struggles with MS and my Grandfather whom has Parkinson's. Without even realizing it I was surrounded by people who were struggling with these neurological studies my whole life but I soon realized I was not alone. There are over 3.4 million high school students in the United States serving as caregivers. We are a "hidden population" of overlooked individuals who are trying to balance academics, athletics, and being a caregiver to our loved ones. I looked for a bridge between the high-level research happening at places like Yale and the daily struggles of these families. When I couldn't find one, I decided to build it.
We aren't just waiting for a cure; we are researching the lifestyle interventions that improve quality of life today. Whether I am at my suture pad, on the ergometer, or in the lab, my goal remains the same: to protect the Motor Mind.
Official publications of research will be uploaded here. As of right now we are in the making of researching how the daily stress of being a young caregiver for someone with MS or Parkinson's causes a "lag" in their own brain's ability to focus. This experiment will need your help to accumulate viable data. If you are a student from the ages of 13- 19 make sure to fill out the form linked below. Thank you for your cooperation and time!