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The Motor Mind project is a youth-led initiative born from a family affected by neurological disorders and a need to help others going through similar situations. As a varsity athlete, I have always looked at the brain through the lens of performance; however, when my mother was diagnosed with a degenerative motor-system disorder, that understanding became a mission. We bridge the gap between complex
Neuroscience and the understanding of it, as well as bridging the gap between families and individuals who have to deal with the real life consequences of neurological disorders and the high priced neurological rehabilitation prices. We believe that while a diagnosis may affect movement it should never paralyze a family's hope. The Motor Mind Initiative focused on raising awareness about neurological disorders while also raising money to provide small-respite grants to those in need of funding to pay for their neurological rehabilitation. Through research, micro-grants for respite care, and community education, we are working to ensure that the upcoming generation of neuroscientists and caregivers are equipped to succeed.
THE SCIENCE OF RESILIENCE: OUR STORY
Most 15 year-olds measure their lives in school semesters and sports seasons. My life changed when I started to measure my life in motor function. Watching my mother navigate a degenerative motor-system disorder was like watching a real life movie of what happens in the nervous system of a person with a neurological disorder. As a competitive rower, I was used to pushing my body to its absolute limit-relying on the seamless connection between my brain's intent and my muscle's response. But at home, I witnessed the "disconnect." I saw how Parkinson's and MS don't just attack the body; they attack the rhythm of a family. This disconnect wasn't only prevalent in my mother but also my Uncle who struggles with MS and my Grandfather whom has Parkinson's. Without even realizing it I was surrounded by people who were struggling with these neurological studies my whole life but I soon realized I was not alone. There are over 3.4 million high school students in the United States serving as caregivers. We are a "hidden population" of overlooked individuals who are trying to balance academics, athletics, and being a caregiver to our loved ones. I looked for a bridge between the high-level research happening at places like Yale and the daily struggles of these families. When I couldn't find one, I decided to build it.
We aren't just waiting for a cure; we are researching the lifestyle interventions that improve quality of life today. Whether I am at my suture pad, on the ergometer, or in the lab, my goal remains the same: to protect the Motor Mind.
Official publications of research will be uploaded here. As of right now we are in the making of researching how the daily stress of being a young caregiver for someone with MS or Parkinson's causes a "lag" in their own brain's ability to focus. This experiment will need your help to accumulate viable data. If you are a student from the ages of 13- 19 make sure to fill out the form linked below. Thank you for your cooperation and time!